A recent global survey shows that Rheumatoid arthritis patients should aim for more when managing their disease.
The RA NarRAtive global physician survey revealed the disconnects between patients and physicians across multiple aspects of RA disease management. Strikingly, new data from the physician survey revealed that two in three physicians stated that their patients living with Rheumatoid arthritis say they feel “good enough” even though clinical assessments indicated that their disease was active.
The physician findings show that more than three in four physicians believed that setting goals with their patients is very important. However, corresponding results from the patient survey revealed that only a minority of patients perceive they have set goals or developed a disease management plan with their physician.
These new findings from more than 1,600 rheumatologists in 15 countries build upon results from the previous global patient survey findings, released in 2015, involving more than 3,900 adults living with RA.
The survey looked at the quality of the physician-patient relationship, overall RA disease management, and the disconnects between patients and physicians in order to improve dialogue and ultimately improve the management of Rheumatoid arthritis.
This survey was conducted online by Harris Poll on behalf of the RA NarRAtive, an international initiative aimed at elevating the important role of the patient in the successful management of RA. Supported by Pfizer Inflammation and Immunology, the RA NarRAtive initiative is directed by a Global Advisory Panel comprised of 39 healthcare providers and patient group leaders from 17 countries.
Rheumatoid arthritis affects approximately 17.5 million people worldwide and 1.6 million people in the United States. It can develop at any time during adulthood, but usually occurs between 40 and 70 years of age.
Dr. Ara Dikranian, San Diego Arthritis Medical Clinic, member of the RA NarRAtive Advisory Panel, and Cindy McDaniel, Senior Vice President, Consumer Health, Arthritis Foundation joined me to discuss the findings of the RA NarRAtive physician survey and why it’s so important to have an active dialogue among physicians and Rheumatoid arthritis patients. They also offered helpful tips on how to improve communication between doctors and patients.
Take a listen below.
Meet Our Guests
Ara Dikranian, M.D., Senior Rheumatologist, San Diego Arthritis Medical Clinic, RA NarRAtive
Dr. Ara Dikranian has been with SDAMC since 2004. “Dr. D,” as he is known to his patients, comes from a long family line of health care providers, following in the footsteps of his father, grandfather and two uncles. His enthusiasm, compassion and love for rheumatology are greater today than ever before.
He received his Bachelor of Science degree in psychobiology in 1991 and his medical degree in 1995, both from the University of Southern California. He completed his internship and residency in internal medicine, and fellowship in rheumatology, at the University of California, San Diego between 1995 and 2000, when he received his rheumatology board certification. Today, he calls SDAMC home and he’s part of the Sharp network of recommended physicians. He is the current chair of the Arthritis Foundation San Diego chapter advisory board. He volunteers his time for uninsuredpatients through the San Diego County Medical Association Foundation Project Access program. He has been honored by being named Arthritis Foundation Community Outreach Volunteer of the Year in 2011. He is a speaker for and advisor to various pharmaceutical companies. He has participated in over 100 clinical research studies that have helped develop many of our current therapeutics for various rheumatologic conditions.
Cindy McDaniel, Senior Vice President, Consumer Health, Arthritis Foundation
Cindy serves as Senior Vice President of Consumer Health at the Arthritis Foundation. Through her various roles, she has more than three decades of experience understanding, educating and empowering people with arthritis to live better. She was the founding editor of Arthritis Today magazine in 1987 and became publisher in 2001. She also oversees the Foundation’s consumer research initiatives and nationwide health outreach through numerous tools and channels. Cindy is a 2008 graduate of Leadership Buckhead, serving on its board and as president. In 2009, she was awarded the Clifford M. Clarke Award for Outstanding Leadership, the Foundation’s highest employee honor.